After a thyroid lobectomy, you'll need to have your thyroid hormone levels checked and will be prescribed a thyroid hormone replacement, if needed. Before my thyroidectomy I experienced ear pain on and off, where it felt like a sharp, stabbing pain around my left ear. In late November I realized I was getting mild depression and my workouts were getting harder to do and basically was running out of energy. My Dr (Endo) said he did not want me in his office for another 7 days and the hospital nurse said that was crazy and she used a Geiger counter on me to see how "hot" I was. Once I heard that I was really happy. She kind of blew me off although she did do a thyroid TSH test and it was "normal". I was hospitalized and bored out of my skull till Friday May 7th when they released me (I had to get my levels to less than 7mr/hour at 1 meter). At 21yo, fairly advanced cancer (luckily only papillary w/ follicular variant) was about the last thing I was expecting, so that was definitely a fun little discovery. Both surgeons recommended almost the exact same treatment plan. I will admit it defiantly made me dizzy but I was able to safely drive to work afterwards. I did not have a JP drain, but I've had them for other surgeries and I know they are annoying. The patient reported no radiation exposure to head or neck during childhood, but she had a positive family history of thyroid cancer in two paternal cousins, nontoxic multinodular goiter in her father and sister, hypothyroidism in her mother and hyperthyroidism in her maternal grandmother. Calcium level 1 day post TT dropped a bit but so far no tingling sensation on the cheeks / jaw, fingers or around my lips, but i'll know more about after my next blood work in a couple of weeks. I know my body and disagree. But, I do with exacting detail remember my first sip of water. Are you sure you want to block this member? He also said that the CT scans looks real good and would tell me more in December time frame. Answers often cure fears. Linking evidence to action: So the procedure was to do partial thyroidectomy, and biopsy during surgery, then removed rest if cancerous. I have never had the kind of fear that I experienced leading up to the weeks preceding my TT. The question is has anyone had these symptoms: burning pain, dizzy, swelling post op 3 weeks ? Dr H. thinks everything is looking good and she retires on the 19th of Aug. He took a look at me, said everything looked great and that he was writing a discharge order for me. There is all kinds of chaos going on around the ICU as well, which is understandable since many of the patients in that unit are in extremely poor health and have important needs. This is because the symptoms are related to the dispersion of the nerves in the area of the surgery. They just put me on a table and put a flat board 2" above my nose and it slowly moved down my body. I can't imagine home hard that would be in the neck. Argue with people or agree with people, agree to disagree if that's what it takes to get you through this. I got a copy of RAI film and right starburst is bigger than left . maybe this is why. I was set up with an appointment the Friday before my Tuesday surgery to meet with the hospital for pre-op which included the anesthesiology department physician's assistant, blood work, a urine sample, a chest x-ray, height, weight, EKG and maybe a few test I'm not remembering right now. sharing sensitive information, make sure youre on a federal When I tilt my face upward and try to swallow, this discomfort is magnified. For me, this was the only appointment at which anyone even discussed paying up front for services. Stiffness and soreness greatly diminishes almost to the point of none at all. So not going to lie, recovery from that absolutely sucked for about 10 days - lots of dizziness, tiredness, general throat and neck pain and uncomfortableness - and I didn't get my drains out for 2 weeks post surgery, which was another great addition to such an extensive surgery. I'd had nine surgeries before my TT. A month later I had a TT and my tonsils out due to a chronic sore throat. 2005 Jun;29(6):775-9. doi: 10.1007/s00268-005-7722-3. Tender neck : After surgery, it is natural for a patient to minimize . Before She was right, the yogurt was a snap to get down while the apple juice was really painful. The pain is in the natural curve of my neck, about 2-3 inches above the incision. and transmitted securely. He said he wanted to get my RAI done - he likes to do it within 3 months of surgery and thought it had been enough time since ct. So, seriously, take the stool softener. Thorsen RT, Dssing H, Bonnema SJ, Brix TH, Godballe C, Sorensen JR. World J Surg. People with a history of keloids (excess scar tissue) may experience more scarring after thyroid surgery. The first four days or so were the worst. That was not my experience. Clipboard, Search History, and several other advanced features are temporarily unavailable. After the shot of midazolam, I was willing to put the gown back on along with the anti-clotting boots. 7) Did an RAI 90mci on Sept 4th at night. But the order of operations has gone like this and I wish I knew all this stuff before (FYI I am a 37yo American but in Manila Philippines so am very frustrated/worried about processes or lack there of): Prior to RAI some surgeons recommend T4 and Thyrogen (which is what my surgeon did at our pre-op visit) and some recommend T3 temporarily and going hypo. I am hoping against hope that I can build my endurance with regular exercise. They said they caught it early though and think they were both stage one cancers. ThyCa: Thyroid Cancer Survivors' Association, Inc. She did not develop other complications of thyroidectomy, such as bleeding, wound infection, vocal cord palsy or hypoparathyroidism. I also had a total thyroidectomy in June (10 months ago) also due to Multi nodule goitre, I had many many nodes on my thyroid gland almost so many that doctors were surprised, and over a 10 year check up process initially from 4 nodes increasing to countless amounts where it was putting pressure on my windpipe, so I opt for a thyroidectomy. I was also informed when they removed my thyroid there was a parathyroid gland in each of the thyroid sections removed (so I have 2 of 4 parathyroid glands removed as well) this is probably why I had minor problems with calcium and magnesium levels. It's hard to raise my head and I couldn't look up at the ceiling. I am currently taking 275! He said I was drenched on my back, and at that point I'd had all I could take of that plastic and paper gown and it came off me and onto the table. On March 8th I had a full eye check and they gave me a new prescription for glasses along with noting that I should have more frequent eye checks (6 months a year) do to the fact that thyroid issues can cause vision changes. You should not lift any heavy objects for about 2 weeks after your operation to avoid any strain on your neck. I was diagnosed with papillary thyroid cancer over the summer and received a total thyroidectomy and bilateral neck dissection two months ago. . Call our office at 410-328-6187. 5 May 2011 1 year out from treatment (for radiation) I had some really entertaining PACU nurses who I conversed with for the better part of two hours until my room in the ICU was ready. On Feb 25th I had the first visit to mental health but do to the fact that my hearing was as bad as it was along with the recovering from surgery I was rescheduled for a later time. It kind of made me mad and I felt a bit taken advantage of that during a time of such crisis they were asking for payment up front. At about 6:45pm the anesthesiologist came in, asked a few questions and said he was hoping for my surgery to start at around 7pm. Emerging from my first anesthesia experience was quite honestly like waking up from a bad alcohol blackout where you have no idea what was going on for the last few minutes, hours, days?, weeks? Now, remember, I chose the doctor who does up to 500 thyroidectomies per year over the one who only does 50. Again - very minor things that don't inhibit me from doing what needs to get done. The patient underwent total thyroidectomy with central and left lateral neck dissection. Endocrine Today | A 27-year-old woman with no significant medical history presented to our institution for management of her thyroid cancer. I am not on the hormone replacement therapy pill yet and was told I will be given the radioactive iodine but I have no idea when!!?? 2 Mar 2011 1 year from being told I have cancer. That is where my memory starts to come back. Not sure what my TSH read at those doses, but I see my oncologist in a few weeks and am requesting a copy of my medical records should be able to figure out what my levels were with each by comparing them to the dates of prescriptions. I asked if I could turn my head (I have no idea why I asked if that was OK, I just did) and I was told, If you can tolerate it. None for cancer, but enough to make me a believer in getting a second opinion. Reading other posts I feel a little discouraged that this feeling of fatigue is so common . official website and that any information you provide is encrypted No idea why this report was 2cm and ultrasound showed 3cm. It's a scary place I don't really want to go back to. I was diagnosed by chance, I was actually post op on back surgery and I mentioned to my neuro the pain in the back of my neck, he ordered a soft tissue MRI and this was discovered. They advised against it thinking that until TSH is low it increases likelyhood of cancer spread as it would increase my metabolism. She explained, again, that the surgery before me had become unusually complicated and apologized for the wait. 2 days for thyrogen shots then one day for RAI. That seems crazy low, is there any benefit at < 0.1 vs < 1.0? I didn't overly strain, but I did have one day where the pain meds must have overwhelmed the stool softener and I pushed a little harder than I think I should have. I was sweating pretty badly and was given anti-nausea medication (it really wasn't that bad to be honest). Pain medication doesn't agree with him. I got 57mci of RAI. 2019 Dec;98(51):e18309. It's been just over two weeks since my thyroidectomy. The last 2 days he has been dizzy, lightheaded. I have always preferred water at room temperature. So, I turned to look at my partner and to make sure he was OK. I would characterize what I went through as "mild discomfort." Although, I highly recommend going somewhere where you can be alone (not a hotel). An MRI of my neck (ordered by orthopedic due to neck pain) showed not only several herniated bulging discs- but a mass on my right thyroid gland. The only problem I had with the surgery was hiccups that lasted about 10 days, I was told this was due to the tube they put down your throat during anesthesia. The two most common early complications of thyroid surgery are hypocalcemia (20-30%) and recurrent laryngeal nerve injury (5-11%). However, there was no significant difference between the groups with regard to the scores at the 1-month evaluation (p > .05). 9 Mar 2011 1 year from having thyroid removed This close anatomical relationship with the thyroid makes the sympathetic trunk and the middle cervical ganglion vulnerable during thyroidectomy, especially when performed with a central neck dissection for metastatic nodes. Another good point I did not have any hiccups from this surgery. Sorry I know this is long. I plan on going to my son's hockey practice on Tuesday, working this week, and getting ready to leave for Green Bay for a football game two weeks from today. NSAIDs (non-steroidal anti-inflammatory drugs) such as ibuprofen (Motrin, Advil), naproxen (Naprosyn, Aleve), or acetaminophen (Tylenol) are most helpful for any pain after thyroid or parathyroid surgery. That said I had this horrible monkey on my back for weeks and I really couldn't shake it. For starters I only discovered what an endocrinologist or Thyroid even was like 8 weeks ago. Initial risk classification was determined as T3N1bM0, American Joint Committee on Cancer (AJCC) 8th edition stage 1, and intermediate American Thyroid Association risk. Suffice to say, I was very disoriented for about the next 10 minutes. Trust me they are, but I worked it out. Post-op is a bit of a blur. Is the lack of hormone 6 days post op the reason for feeling like HELL??? This site needs JavaScript to work properly. We got to know each other, and exchanged some friendly banter on a variety of topics including football and hockey. Nothing like feeling normal. The ENT said I didn't need a biopsy because my nodule was so big and he recommended to just do a total thyroidectomy (TT). 2022 Sep;46(9):2212-2222. doi: 10.1007/s00268-022-06610-0. Nov 2009 through Oct 2010. On the Aug 18 I had my 2nd Stapendectomy surgery with Dr C2. I had compression stockings on that kept me up, noise like crazy in the ICU, nurses and doctors coming in, 2 IV (one in each arm), and a blood pressure monitor going off every hour. I know part of it is because of my cats needing cuddles at 3 am, but I was wondering if anyone else had this problem. I also never took any narcotic pain killers after surgery. I also felt myself getting hungry which was a good sign. At 18 days post surgery the throat pain flares up only if I over use my voice. I put them on the table so the doctor could see them and very soon after saying hello, I said, these are my questions. So, they gave me another shot of something for pain. Know that this cancer is treatable and you will be ok but do not belittle your diagnosis - it sucks- don't neglect your fears they will eat you up. On April 20th I was informed that the results from Armed Forces institute of Pathology Washington DC and the summary was that the large mass of follicular cells was also cancer. Hello, They redid the area around my neck for about 10 more minutes (this is slightly unnerving). They said let the steri-strip fall off on its own and it fell off today. I am not sure if TMJ or other dental problem vs the salivary glands. In the meantime non-invasive treatments based on ultra sound, radio-frequency may help. Application of the healthcare failure mode and effects analysis system to reduce the incidence of posture syndrome of thyroid surgery. On the 9th of September I had an appointment with my PCM and he confirmed I still had a major ear infection and gave me different antibiotics for it. I have discovered that this is not a good cancer to have and it has not been easy. Fever with a temperature higher than 101.5. Typically thyroidectomies take about 3hours and you come out with a cute little 3in scar. The result of the biopsy concluded Papillary Carcinoma. Went to Bremerton naval emergency and they put me on oxycoton and told me to go to Madigan on Monday On the 18th of June I went back to Dr Ch., Endocrinology at Madigan for follow-up on my CT scans and to check the balance on my thyroid meds. Epub 2021 Jun 1. My blood pressure which normally is very normal (120 to 125 / 80 to 90) was spiking at that point at 160 over 105 and I know it was just anxiety and ativan would have helped. So I was told at that time . Will do an RAI in 4 weeks. My family members tried to reassure me that everything would be ok, but I just couldn't stop thinking thoughts of "what if I don't wake up," "what if I do wake up," "what if they find something incredibly bad inside." Your neck is likely to be swollen and may feel hard and numb right after the surgery. It makes hormones that control every part of your metabolism, from your heart rate to how quickly you burn calories. My first endocrinologist was awful to deal with so I switched to seeing my current endocrinologist, who is ok but a hour and a half drive and she recently reduced her clinic hours to just on friday which doesnt work with my work schedule. Recommendations to newbies: Ask questions on here. I'm still a horse. It took 26 minutes. Two weeks ago I wrote a post about my extreme anxiety preparing for a total thyroidectomy and central neck dissection. We called our local ent (who did the thyroidectomy in 2013) he was out of the office & since the ENT who did the most recent surgery of his lymph nodes is in Cleveland ( 3 hour drive for us ) so I took him over the the emergency room. Now that I have my Vestibular training times setup I hopefully will be able to schedule Physical therapy for my knees without conflicts. It sucks a bit, but plenty of people have totally fine experiences with no long term complications. his right arm had a deep muscle hurt, like a toothache. National Library of Medicine Muscle cramps. Mentally I feel like I have cleared this massive hurdle. An evaluation of the incidence, the typology and predictive factors of chronic pain was carried out at 3 and 6 months after thyroidectomy.A prospective observational study, having included each of the patients prior to their thyroidectomy, was carried out over 12 months. My wife went home to take care of our kids and my mom came in for a couple hours. But, after some bit of haggling I agreed to a small payment up front (really small - like less than a trip to Costco small) and to pay the balance after my insurance got done with the bill. Have questions about navigating your Inspire support community or need assistance from one of our Inspire Moderators? 3) I have a throbbing pain radiating from neck. You will experience some discomfort at the incision site as well as a raw or sore throat from the breathing tube that . Some people are put on T4 when they leave the hospital. He said he would test the tissue during surgery for cancer. When I told my endo 3 weeks ago that I feel cruddy, I had a blood panel done and everything is in the normal range. On the 28th I had my appointment at Dermatology, recommended by the ENT people at Madigan. But 100% the greatest advice I can give is to make sure you have the best doctor you can get. That was attributed the nodules and the cancer. Held at hospital 3 days post RAI, then stuck here since I have a 2.5 year old. I also feel sad that my recovery has stagnated and I don't see any improvement in my voice or breathing. To analyze the effect of neck stretching exercises, following a total thyroidectomy, on reducing neck pain and disability. I also received some stitches on nerves inside. My wife took my kids up to her parents in Wisconsin and my mom stayed with me in Chicago. Your health care provider may advise using sunscreen to help keep the scar from being noticeable. The patient was diagnosed with Horners syndrome, a disorder characterized by pupil constriction, eyelid drooping, eye protrusion and lack of sweating on one side of the face caused by damage of the ipsilateral cervical sympathetic chain. My only regret at that point is that I didn't ask for ativan or xanax or something to calm my nerves it could have been given IV. They placed an IV line and took some blood samples. I've read some of the older posts concerning this issue but the posts are discontinued. In general, thyroid surgery is well tolerated and the vast majority of patients will have a smooth recovery. Was in Hospital 5 days post op with JP drain and limited help, had numerous asthma attacks due to not being able to eat and acid reflux. The initial screening showed no cancer on that side once removed. The effects of the stretching exercises on the participants' neck pain and disability, neck sensitivity, pain with neck movements as well as on wound healing, were evaluated at the end of the first week and at 1 month following surgery. At last a surgeon came in and had me sign the forms. Ask to be treated in the hospital for RAI to protect your family and the rest of the world. 2012 w/ different Endocrinologist, found 6 very large lymph nodes in neck. Wednesday and Thursday I continued to improve. I called the office to verify that was correct and was told it was. They brought him back to see me in pre-op again. There they did a strep test (I'd had a sore throat off and on for a year) and a ct scan. So frustrated and all alone - 2nd guessing what Dr's have done and why. Most people start to feel recovered in 10 to 14 days. Cheers. She says slowing down in terms of socialization and being tied to my desk more has caused me to have bad posture and allow the tension to really build in that area. It continued for maybe a couple of weeks and always took me by surprise.
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